Leslee, Leo’s mom, shares her thoughts on what life is like at our House:
“Leo was diagnosed with PNP Deficiency in January of 2024. There are fewer than 100 people worldwide diagnosed with this disease. The only treatment is a bone marrow transplant. Our hospital back home in Indianapolis didn’t seem confident in treating this disease. I was shocked that Cincinnati responded to my “second opinion” inquiry within 48 hours. They scheduled us quickly and after one meeting, we knew we’d move our care to Cincinnati.
In the beginning of our journey here, the House provided a change of scenery, hot meals, a clean room without medical staff interrupting, an actual bed to rest in, friendly staff and beautiful grounds.
Now that we are living here full time, it’s been our safe-haven. It has brought comfort. It has provided some type of normalcy. I can cook for my picky son when he happens to have a particular craving.
We are so blessed by the RMH. It gives us a safe place to stay, gives us activities to look forward to and provides nourishment. The staff is always so kind and encouraging. Dance parties, drum circles and the ocean party were all favorites.
A cozy bed, a warm meal and a hot shower are things that are an immense blessing while in the trenches of caring for a chronically ill child. Taking the costly burden of living out of a hotel off the table has afforded me the ability to focus on caring for my son.
Without Cincinnati’s Ronald McDonald House, it would have made seeing family very difficult. My family lives too far away for just a short two hour visit. It’s been such a blessing to have my other children stay with us as a family.”